“I just don’t want people to be scared of her,” her sister had said when they first received the diagnosis, but now that the baby was here the whole family had turned to a huge blue defiant stare that moved as a part through the waves, with the fear of the world curling tall on either side of them. They wanted – what? – to take the sun by the face and force it down: Look at her! Look! Shine on her! Shine! Shine!”